I wanted to compile a list of published books that have been written about MRKH. I love indie authors, and will support anyone who wants to write a book to raise awareness about MRKH. At the end of the day, that was my goal. If you are writing a book, thinking about writing a book, or have a written a book that is not listed here please contact me and I will include it or answer any questions you have about indie publishing.
***EDITED TO ADD***
For international customers, it appears most of these books are available through Book Depository. They offer free worldwide shipping. I’ve included links below.
Us Girls: My Life Without a Uterus by Rachael J. Hughes
Genre: Biographies & Memoirs
Availability: Digital & Paperback through Amazon
About the author:
Rachael J. Hughes is a loyal Virginian, a “devout” Unitarian Universalist (fellow UUs will laugh at the adjective), stepmother of two amazing young men, loyal wife to an amazing and supportive husband. She has been a writer since she could hold a pen; an avid Pearl Jam fan since age 10, and she has been a dreamer since before her eyes were formed. She lives in Central PA with her four cats and her family. She earned her MA/MFA in Creative Writing from Wilkes University. She is currently working on a number of picture books and a YA novel, currently titled Changing Lainey. One of these days, she’ll realize the beauty of her poetry and share it with the world.
Rachael is the one in 4,500 girls born with Type 1 Mayer-Kuster-Hauser-Rokitansky syndrome—the absence of, or malformation of—female reproductive organs. Amidst the storms of family and during teen years that challenge many girls, the once-confident teen searches for her identity as so-called specialists search for her uterus.
Having already faced the complications of hydrocephalus, a micro-bladder, lazy eye and out-turned gait, the medical field’s hide-and-seek with her fertility leaves Rachael questioning her self-worth and abilities and feeling like an inadequate woman.
In the midst of her struggles, though, she finds Pearl Jam’s Eddie Vedder, a human being familiar with loss, grief, and self-struggle. Through her love of Pearl Jam, and her abilities as a writer and artist, Rachael presses against the undertow of depression toward mental wellness.
This story is a must-read for all girls facing questions of anatomy and self-worth. Told with lilting humor and raw honesty, Rachael’s story echoes the plight many women face to define themselves and chase their dreams. Her “road less taken” is a bumpy highway of confusion, love and triumph, with a kickass playlist.
Changed: (New Adult Romance) by T.S. Murphy
Worldwide shipping for paperbacks available through Book Depository
Genre: New Adult Romance / Coming of Age
This book is available digitally from all major retailers. Paperback is available exclusively through Amazon.
Book Depository: $18.68
About the author:
T.S. Murphy originally hailed from a tiny town in Oklahoma that most people have never heard of. She now lives in Louisiana with her wonderful husband of many years, a herd of cats, a pack of dogs, and a sweet bunny rabbit named Jim. When she isn’t tending to her animals or husband, she’s working in her garden or chained to a computer writing. In her spare time, she likes to donate forty hours per week to the anonymity of corporate America in exchange for a paycheck to fund writing-related expenditures.
Kate McGuire has loved her brother’s best friend for years—an older guy who didn’t know she existed and whose smoking-hot girlfriend could punch her into next week. But now Kate’s eighteen and Quinn Haley is girlfriend-free and looking at her like she’s outside the friend zone. Everything is working out perfectly—until she receives a surprise diagnosis, one that may prevent her from ever having sex.
Quinn has dealt with abuse and rejection his entire life, but when he finally breaks up with his cheating girlfriend, he realizes his best friend’s little sister has always been there for him.
Kate’s entire future will be a lifetime of no. No children. No sex. No Quinn. And when Quinn won’t take no for an answer, she fights him every step of the way.
New Adult novel: Recommended for 17+ due to mature themes and sexual content. HEA guarantee.
The Girl with No by R.J. Knight
Worldwide shipping available through Book Depository
Availability: Digital & Paperback through Amazon. Digital version is available in Kindle Unlimited for free to those who have a subscription.
eBook: $4.03 (free in KU)
Book Depository: $20.00
About the author:
Hi My name is Rebekah Knight, from Northern Ireland (UK), I went through such traumatic experience, which changed my life forever. it has however made me who I am today, strong and have the best relationship with God because of it.
The book’s purpose is to help create awareness about the unique condition known as MRKH, It a journey of what I went through as a young woman. The book aims to help other young women going through a similar experience, this will really help parents of daughters understand what its like and the journey behind it all.
by Andreia Trigo
Paperback through Amazon The Formula to not giving a F**k about Fertility: To help you find balance and increase your chances of success with natural conception, assisted … involuntary childlessness and infertility.
Worldwide Shipping through Book Depository
Genre: Health, Family, & Lifestyle
Availability: eBook and Paperback through Amazon & Paperback Book Depository
Book Depository: $15.80
About the author:
Andreia Trigo, RN, BSc, and MSc, was diagnosed with infertility at the age of seventeen. Fifteen years later, she was able to find peace and live a happy, fulfilling life. It has been her life mission to help other people achieve the same ever since. Using logotherapy and neurolinguistic programming, Andreia was able to identify the strategies she had used to get on with life. These are the same strategies she offers through inFertile Life so that you can cope with the losses of infertility, create a new fertility plan, and increase your chances of success in achieving that plan. These strategies have helped many others facing infertility and involuntary childlessness find balance, peace, joy, and the strength to rise above their inevitable suffering and live a meaningful, purposeful life regardless of their circumstances.
Andreia Trigo RN BSc MSc tells her infertility journey and how she managed to achieve a meaningful life regardless of circumstances. She also provides the tools that you can use to achieve the same result. It’s a very practical book that will help you: • Cope with the losses of infertility • Create a new fertility plan • Increase your chances of success in achieving that plan.
Elizabeth, Just Sixteen eBook on Amazon
Also available from:
Genre: Women’s Fiction
Availability: Paperback on Amazon, Abe Books, & Book Depository (for international customers)
$14.99 on Amazon
$15.58 on Book Depository
£11.23 on Abe Books
About the author: Interview with Global MRKH: https://theglobalmrkh.wordpress.com/2016/07/26/elizabeth-just-16-the-perfect-story-of-an-imperfect-mrkh-diagnosis/
Elizabeth Appleton is a sweet and easy-going adolescent. But as she turns sixteen, she discovers something so devastating about herself that her whole world is turned upside down. Elizabeth has been born without a womb or a vagina and is diagnosed with MRKH, an unusual congenital disorder that affects the female reproductive tract. Frightened and confused, Elizabeth must struggle to understand how she can still be a girl but no longer a ‘normal’ one. As she questions everyone and everything around her – her burgeoning sexuality, her gender, her hopes for the future – Elizabeth must fight against the shame and betrayal she feels if she is to ever become the woman she has always hoped to be. In her first novel, Cecilia Paul, now a retired expert in the field of MRKH, sensitively explores and illuminates this complex and often emotionally fraught medical condition, in order to raise public awareness of MRKH and to support those affected by it.
Rokitansky by Alice Darwin